Welcome to the new Blog spot for families with a member with dual diagnosis Autism Spectrum Condition/Down’s syndrome (ASC/DS)
There will be a new blog piece every month. This is your blog so if you have ideas for, or want to write, a blog piece, please email stuart.mills@downs-syndrome.org.uk
We hope that this blog will be another tool for families to share their experiences and ideas.
ASC/DS web pages
We have been busy updating the ASC/DS section of our website so please take a look:
We have added a news section, where you can find out about an exciting new study, the EU-AIMS Longitudinal European Autism Project (LEAP). EU-AIMS is the largest single project focused on autism in the world.
The next meeting for families will be on Sunday 18 April 2015 at the DSA’s National Office where Paul Isaacs from Autism Oxford will be talking about what it is like to have a diagnosis of ASC. If you have any questions about and/or would like to attend the meeting, please email stuart.mills@downs-syndrome.org.uk
‘Autism Characteristics and Behavioural Disturbances in ∼ 500 Children with Down’s Syndrome in England and Wales’
Some of you may have been at our last meeting for parents where Dr Georgina Warner presented some of the findings from her research project. Dr Warner’s research suggests that the prevalence of dual diagnosis ASC/DS may be higher than previously thought. The research also shows that those with ASC/DS have an atypical profile which may be why parents find it difficult to get a diagnosis. We hope to use Dr Warner’s research to raise awareness of ASC/DS and to alter thinking about how this group of children present. Dr Warner and her supervisor Professor Pat Howlin are currently writing a parent friendly article about the research project. The article will appear on the news section of our ASC/DS web pages so remember to keep an eye on our website.
My Daughter had DS and upon leaving Mainstream School ended up with Depression,at first I thought she had early Dementia or lost part of her Brain as she just seemed to have forgotten everything she had learnt…hard getting a diagnosis as everyone said sorry this is a dual diagnosis can’t help,finally we found a Phycologist that helped but 3 medications later just takes the edge off things,she also seems to have acquired OCD as well,I would dearly love my old daughter back…does anybody know of any miracle antidepressants,does this sound like your son or daughter.
Dual Diagnosis ASC / DS 
My Daughter had DS and upon leaving Mainstream School ended up with Depression,at first I thought she had early Dementia or lost part of her Brain as she just seemed to have forgotten everything she had learnt…hard getting a diagnosis as everyone said sorry this is a dual diagnosis can’t help,finally we found a Phycologist that helped but 3 medications later just takes the edge off things,she also seems to have acquired OCD as well,I would dearly love my old daughter back…does anybody know of any miracle antidepressants,does this sound like your son or daughter.
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